Living With Crohns Disease

Living with crohns disease is hard for many people. It can be very hard to adjust to a life with a chronic illness, and I think everyone with crohns disease knows this! On this page I will try to share some experiences on how I've dealed with crohns disease so far in my life and how I'm living with crohns disease...

If you've read other pages on this website, you might already know that I was in the army when I got diagnosed with crohns disease. I had very bad access to informational sources about the disease, but I did get a lot of brochures about it, which I read every page of!

Living with crohns disease was very hard and frustrating at the beginning, because I didn't quite get it. I didn't fully understand what it would say to live with a chronic disease for the rest of my life...I did realize that it never would dissapear, but I did not realize that it would take that much time to get better either. All I wanted in the beginning, was to get a pill that could make me better, and I believed that it was a pill that could do so. But I was very wrong on that one, I soon found out...

So, for my part, at the beginning on living with crohns disease, it was just one thing that mattered. And that was to finish my time in the army. Therefore I didn't really think about how my life would get after the time I had to serve in the army with this disease. I lived in the moment and just lived day by day. But I would soon enough find out how my life at home with a chronic disease would be like. That hit me quite hard in the face when it first hit me, and I learned that living with crohns disease isn't easy at all!

When I first came home, I had one good month with the disease. It wasn't so bad and I could do a lot of stuff, but not as much as I wanted. Therefore I really hated the situation. The disease held me back. I was 20 years old, and I didn't want to get held back. I wanted to live my life and to live out my dreams! "It's not supposed to be like this?", I thought...

Then December came along. And BAM!, the disease hit me really, really hard. It knocked me completely out and I wasn't able to do much. And it continued to be like that to March. Crohns disease did really held me back now, and I hated every f****** second of it and I was starting to feel very depressed for a while.

But suddenly it got better...and even more better. The summer came and it was almost as good as it was before December again. I went to my doctor, and he asked me how I felt. I said that I felt better, and he told me that my test-results were getting better too. But still, it was far from "normal". He also said that I should try to start on school again and maybe try to work out a little bit, because that was the way people got over this disease, and many people which living with crohns disease go to work and school etc.

So, I went home and decided that crohns disease no longer should hold me back on anything, anymore! But you know what? Despite of how hard I tried to live like that, the fact was still that crohns disease did held me back. Before I went to the army, I played a lot of football, worked out 5-6 times a week, and did a lot of other stuff. And at this point I wasn't even close to be able to do that. So I told myself that people can say what they say and think what they think, but that doesn't change the fact that I'm sick and that crohns disease do hold me back at this moment!

Living with crohns disease really sucks compared to not living with crohns disease! That was the conclusion I drawed...

I didn't want a life like that, and I started to search on the internet to get some help. Soon I discovered a page where the headline was like this: "Learn to Live With Crohns Disease"...

I thought "hm...Learn to live with crohns disease?". After thinking about that for a while, I decided that "Learn to Live With Crohns Disease" wasn't good enough for me. Not at all!

"Learn to Live With Crohns Disease", yeah right...What am I supposed to do? Go around and live like this for the rest of my life? Sorry, but that is not an option for me. The battle was really on, and I wouldn't stop until I won. I decided to not let crohns live my life.

So, I decided to change my diet completely and start to work out a little bit again, if I felt like working out. I also changed my thoughts on some things and I got more open for alternate ways to try to cure this thing on. And that helped me to get far away from "Learn to Live With Crohns Disease".

I said to myself: "Hey, it isn't a medicine yet, that can cure this thing, so why not try something else in addition to the medicine you get from your doctor? It sure as heck can't heart you to try?". I also read about some people that've gotten much better after following some alternate ways. So, "why not?", I thought.

Today I'm much better, and all my previous test-results was like "normal". I've worked very hard to get to this point, and I've had to let some things go, and start doing some things that I may not like, but which is good for me, like eat different.

So my advice to you, is to get as much information on crohns disease as possible, and to learn as much as you can about it. In addition to that, you might want to get a little "devil" in you that is determined to win the battle against crohns disease, and you may also change you mind a bit about alternate ways to get better on. Living with crohns disease and dealing with crohns disease, doesn't have to be so bad. In some extreme cases it isn't possible to get better, but in many cases it is possible. The medicine will help you, or other things will help you. But you might have to change a few things in your life, like I did.

I've searched on the internet on everything that has to do with crohns disease, and met a lot of people that seems to think: "I got crohns disease, but hey, what can I do?" and it seems that they just lean back and wait for someone to help them get better. On some people that might work, and the medicine you get might work extremely well on you, but on many people that attitude won't get you better at all, and living with crohns disease and dealing with crohns disease might be a struggle.

So I don't quite get people like that, but we are all different and I will certainly not accept that my life, dreams and goals will get ruined over a stupid disease like crohns disease. I've seen too many people that've gotten better and too many people that are able to live a perfectly normal life with this disease. So why shouldn't I be able to do so as well? If it can happen to them, it can happen to me too. And to you!

So, if you are a bit like me, and think that "Learn to Live With Crohns Disease" isn't good enough for you, click here to start to get some information about crohns disease...




If you want to get to the "Crohns Disease" page from the "Living With Crohns Disease" page, click here...